HealthDay News — Family-centered pediatric advance care planning (FACE pACP) is associated with a lower likelihood of symptoms and suffering for adolescents with HIV, according to a study published online Oct. 19 in Pediatrics.
Maureen E. Lyon, PhD, from Children’s National in Washington, DC, and colleagues randomly assigned 105 adolescent-family dyads to 3 weekly sessions of either FACE pACP (including pediatric advance care planning survey, Respecting Choices interview, and 5 Wishes directive) or a control arm (including developmental history, safety tips, and nutrition and exercise tips). Patients were a mean age of 17.8 years; 54% were male and 93% were African-American.
The researchers identified two latent HIV symptom classes at 12 months: higher symptoms and suffering (27%) and lower symptoms and suffering (73%). A positive effect was seen between FACE pACP and dyadic treatment congruence, and higher treatment congruence had a negative effect on symptoms and suffering. Symptoms and suffering were predicted by higher religiousness.
“Our results underscore the potential to improve patients’ quality of life by offering pediatric advance care planning in HIV clinics based at pediatric hospitals,” Lyon said in a statement.